Daily Dosage 0008

8th November 2023

Quote of the day

  1. ‘None of us, including me ever do great things. But we can all do small things, with great love, and together we can do something wonderful’ – Mother Teresa

The Three Amigos decide to Stand Up to Cancer

Now if you have previously read some of my blogs you may have come across a couple of tales about the three amigos, Brain, Body and Bottom. These three friends are connected to a slightly vertically challenged (now middle-aged woman). For the purpose of these stories, we will call her Miss Determination (even though now she’s a Mrs and maybe not so much determined but more stubborn (as her husband likes to remind her most days!)

Anyway, the three amigo’s Brain, Bottom and Body had watched Stand Up to Cancer last Friday evening and as much as they enjoyed the programme it really upset them. All of all the stories of people affected by cancer. In particular one young girl who was just 11 and sadly died of cancer after also losing her mum to cancer.

 As the three friends sat there together tissues in hand wiping away the tears Bottom said ‘It’s so sad, we need to do something to help these people’.

Body who was shaking from the crying said ‘I agree we need to fight back’.

Brain said ‘I have an idea I have seen these 100 squats a day challenge, why don’t we give it a go and raise some money for research?’

To which Bottom replied ‘Squit challenge won’t that be messy?

No said Brain ‘SQUATS’. ‘You know where you bend your knees and then lift up. It’s supposed to be really good to get a firm bottom, Bottom.’

‘I’m not sure I can do the squats you know Brain I’ve got a sore leg from playing football,’ said Body.

Don’t worry ‘said Brain ‘we can think of something similar to do. What about sit ups maybe?’

Yes, I can do them no problem!’ said Body.

‘Great!’ said Brain. ‘To be honest I think I will struggle counting. It’s not my strong point at the moment my head get all fuzzy and I lose concentration.’

Don’t worry,’ said Body. ‘I have a clicker counter from my old days on the doors we can use that’.

Bottom was looking rather sheepish then said ‘you know what I’m really nervous if I squat too much what if I trump and have an accident? I haven’t got a spare pair of undies since I blew a hole in my other ones.’

‘Don’t you worry,’ said Body. ‘I have got a new pair of special Lycra ones you can borrow not only do the tuck your tummy in the well keep you trumps in too’.

Bottom looked down at his tummy then looked at the other two and they all laughed.

‘Right then’ said Brain ‘we need to set a schedule and pick a time we can do it together. I’ve developed a timetable and marked each day for the whole month on the calendar’. To which the other two smiled and rolled their eyes back. Secretly they know if they ever needed a robust plan to stick too Brain was the girl for the job.

So, every day for the whole of the month the three friends would get together as planned and do their squats and sit ups. Brain would get the counter and click every time they did a rep. Bottom would laugh every time, she made a noise but was thankful for the stretchy pants. Body was also glad that she could join in despite being injured.

Some days the three friends would have to break up the squats into smaller sections just because they were short on time. The main thing is they got them done. 100 squats/sit ups a day for 30 days.

Bottom could definitely feel her cheeks getting firmer. Body could feel her stomach getter tighter and Brain could manage to count each rep more than she thought she could have.

The End of the Challenge

It was day 30, the last day of the challenge. The three friends had religiously stuck to the challenge. At times they thought about stopping especially as it hurt so much but then they each thought of the little girl in the programme and carried on through gritted teeth and clenched cheeks!

That’s it’ said Brain ‘we’re done, how fantastic it that’. Body looked up and smirked which suggested she didn’t agree.

What’s the matter Body?’ asked Brain.

I feel like I’ve not fully done the challenge,’ said Body.

Don’t be stupid’ said Brain, ‘you adapted it because there was something you couldn’t do. You stuck to the challenge showing other people they too can adapt to suit their physical needs’.

‘I guess you’re right’ said Body sticking her chest in a proud sort of way.

Brain looked at their donation page. She turned to the others slightly disappointed and said ‘unfortunately we haven’t met our donation target’

Bottom looked at the two friends and said ‘that doesn’t matter at all. Remember that little girl, we did it for her and for people like her. Together we stood up for cancer to inspire others to do the same and give people hope, that’s what matters.’  

 ‘You’re always so right,’ said Brain.

Then the three amigos gave each other a big hug. They all felt really proud of themselves and deservedly so.

Right then who’s getting in the bath first?’ asked Body clutching her stomach.

Day 8 100 squats done!

Sorry it’s a bit late for today but I got it done in the end, keep going everyone and thank you for reading

See you tomorrow

X x x

Daily Dosage 0007

7th November 2023

Quote of the day

  1. ‘If you are always trying to be normal you will never know how amazing you can be’ – Maya Angelou
  2. ‘If you do what you’ve always done, you’ll get what you’ve always gotten’ – Tony Robbins

Go your own Way(oh)

Sometimes in life we have to make decisions that feel out of our comfort zone. That can often make us wonder whether we’re making the right choices at all. In fact, so many of us seek for confirmation from others (including myself) as to whether we are making the right choices. It could be a new career, ending or beginning a relationship, moving to a different place, starting a new business or just starting a new hobby or deciding to change something in your life with the hope of making it a better one.

I can’t guarantee that all your choices will end up with the results you wanted. What I can guarantee is that if you make these choices purely on your own then you should be comfortable in the outcome. Noone else is to blame for the choices we make in life and what happens to us. We all make mistakes, but it’s how we learn from them that truly make us better versions of ourselves.

We will always get the same result constantly doing the same thing we have to put a bit more effort in if we really want to change something. After my operation and SRS therapy my physical strength was at an all-time low. I literally struggle to walk some days, getting out the bath unaided was a total challenge. I was tired all the time and on a lot of steroids, I totally struggled with my speech so would often avoid saying what I thought because I knew it would be a struggle (trust me for a woman that likes to chat that was difficult).

I was fortunate that I had the time to prioritise my health and that is exactly what I have been doing. I don’t know exactly what date I started this but I’m so glad I put in the effort. Over the past year or so my fitness has improved massively.  I go to the gym, I’m doing walking netball, I go for walks and even doing a fitness programme (which I will talk about in another blog). With all these other elements of my life have also improved, I’ve lost weight (although this has never been a focus which I’m sure anyone with cancer will relate to). Sometimes your weight can fluctuate due to steroids or tablets. It’s awful especially when you have gerbil shaped face already but it’s there to help you get better and that’s what it did. That and a bit of effort on my side. As well as my fitness my noise sensitivity and speech are also improving. I love it when I see someone and they comment on how much my speech has improved as that is the thing, I am most conscious of. Prioritising my health hasn’t always been easy it’s taken a lot of consistency. Some days are struggle and you feel like your back to square one. Most days I still need a nanna nap to get me through but I do. Ultimately, I want to change and I’m not prepared to go back to where I was not when I’ve come so far.

Those around you who love and care for you, doctors and nurses maybe. These people can help you on your journey but ultimately you have to take responsibility for yourself. No one is going to save you. You need to save yourself.

I’m not prepared to be ‘normal’ whatever that is anyway and neither should you so what ever it is you want to do go for it (starting today)

Day 7 100 squats done I split them up today in blocks of 20

Sorry it’s a bit late for today but I got it done in the end

See you tomorrow

X x x

Daily Dosage 0006

6th November 2023

Quote of the day;

  1. Communicate. Even when it’s uncomfortable or uneasy. One of the best ways to heal is simply getting everything out – Unknown
  2. What’s the bravest thing you’ve ever said? Asked the boy ‘Help’ said the horse – Charlie Mackesy

It’s good to talk

I think there’s something in the family where we all like to have a ‘camp’. Today was a prime example of that. I nipped into town to get some clothes altered then bumped into someone from walking netball, then later my mum, then my cousin and husband then my auntie. There we were all stood around the butchers in the market having a chat about peas, pies and cakes. But that’s why I like where we live so much. When I was working all hours and travelling, I didn’t have time for that and shamefully never really made time for my parents. That’s because we get so caught up in our own lives we sometimes forget about others, well it’s not that we forget we put it off because we’re tired or we’re busy etc.

I’ve come to realise I really couldn’t live in a city where you are just an unknown face. I definitely need to be part of a community and I think a lot of people thrive in close knit communities. In fact, studies have been shown that communities which are closer, interact more and help more tend to live longer happier lives (there is a really good book on this called Ikigai if you want to read).

Now if anyone knows my mum, she can talk to anyone and has been known to talk a glass eye to sleep (ha ha). Unfortunately, I think I have developed this trait much to my husband’s annoyance. I talk to people because I am genuinely interested in how they are doing, feeling and want them to know that I actually care. I don’t do it to strangers because that would be weird but I do smile at them. So, if you see a small lady, possibly wearing headphones smiling at you maybe twitching, don’t panic I’m not about to attack you I’m just being friendly and sometimes that’s all someone needs in the moment.

I think a lot of problems could be solved with a good cup of tea and a chat. I’m always here if anyone wants to talk. If you bore me, I’ll just put my noise cancelling head phones on don’t worry.

Remember you never know what someone is going through so just be kind always whenever you can.

Day 6 100 squats done in the gym

Sausages (veggie ones for me) and sparklers at ours tonight a chat at the table about how everyone has got on today. Simple things

See you tomorrow

X x x

Daily Dosage 0005

5th November 2023

Don’t Look Back In Anger

Quote of the day:

  1. You will not be punished for your anger; you will be punished by your anger – Buddha

Sometimes it can truly hard to not get angry by the situations or things that have happened to us. So many people if you sat down and listened to them have had their fair sure of misfortunes that could have forced them to act out in anger. Often you hear of athletes of business people that were fuelled by anger. However, I’m pretty sure that the same flame burning inside that caused them to take action at some point will become more of a burden and probably cause a feeling similar to indigestion. How often have you been angry with someone to the extent that it affects you more than them. This is what Buddha is saying in the above quote. Quite often the ones we are angry with are blissfully unaware if the pain we are suffering. It’s so much harder to frown than it is to smile. It takes effort to stay angry with people. I often hold onto grudges for far too long (it’s one of my many weaknesses I am slowly learning to work on). I think it’s because I am so sensitive that when I give, I give my all and when I get let down it truly hurts and that’s where the anger starts to build up. Better still if we can’t forget what someone has done to us try to learn to forgive if only for our own sakes.

FU*K CANCER

The thing is I could easily get angry about all the things that have happened as a result of cancer not once but twice. But who will ultimately benefit from that, it will be cancer causing more stress, worry and most likely make me ill. As hard as it can be to accept sometimes, I am who I am (trust me there are times when I really hate not me but the situation I am in, this usually coincides with the monthly blues). However thankfully that surpasses as I know I have so much to give and how lucky I am. I have what some people dream about having; an annoying husband, two annoying teenagers a roof over my head, supportive equally annoying family and weird quite often drunk friends. Some people don’t have that at all. How lucky am I. (I love them all really)

Cancer can take away my physical strength (I’m working on that as well so watch out), my speech, my ability to work as I used to. It can even make it really difficult to feel ‘normal’ in every day social situations struggling to enjoy music, shopping, like everyone else. However, there are things in my control to which I won’t give cancer the benefit of taking away from me. Cancer can’t take away my will power and resilience (stubbornness Ste would say)

I will use my situation (and the sh!t that is cancer) to create positivity in the best way I can. To make friendships with the most unlikely of people and in the most unlikely of places. I will use it to spread hope to others, laughter at my misfortunes. Knowledge of my misfortunes to help others get earlier diagnosis and better chance of survival. Now isn’t that a far better act of revenge.

So unless you want to constantly have the Rennies on standby for the anger inside you I suggest you do what Elsa does and just ‘Let it go’

Day 5 40 squats done 60 to go.

Happy Bonfire Night

See you tomorrow

X x x

Daily Dosage 0003

Show me that the good life doesn’t consist in length, but in its use, and that it is possible – no entirely too common – for a person who has had a long life to have lived too little.’ Seneca, Moral Letters, 49.10b’

3rd November 2023

Live Your Life

Tonight, I’m sat in front of a lovely roaring fire, my dog Woody staring at me, Stand Up to Cancer is on in the background which is the whole reason why I’m doing the 100 squats a day challenge and writing these blogs for 30 days.

I remember when I was first diagnosed 6 years ago, we went away one October half term. We had just been to a nearby adventure park and did a 100ft plummet as well as rode on a forest toboggan. It was a fantastic day, one which I will always remember the fear, adrenaline and natural protection of each of my children as I plummeted down both the fall and the toboggan ride. That night we sat in the cosy caravan watching Stand Up to Cancer.  At the time it said that 1 in 4 people will be affected by cancer in their life time. There we were. I was our 1 in 4 but I was sort of glad that if it had to be 1 of us it was me.  How ever scared I was of what the future would hold for me.

This evening tonight, it’s now 1 in 2. So, in 6 years it’s doubled the amount of people affected by cancer. It’s so scary and I believe our lifestyles and processed food have a lot to play in that (but that’s another blog).  That’s why it’s so important we keep on funding for research to help find causes and treatment to all cancers.

Watching programmes like this can be quite hard and heart warming in equal measures. I know I won’t be able to get through the night without shedding a tear. In fact, I’ve put it on silent now so I can concentrate and not get to upset whilst writing this blog. (Plus, I’m particularly bad at multi-tasking…. I should have been a man!!).

No one knows how long we have on this planet. That’s why it’s so important that we live our lives to the fullest that we can. Live in the moment. Enjoy the simple things, not materialistic items.  Make the most of our health, visit exciting places, go outside our comfort zones. Help others, be kind, love with all your heart. Grab opportunities that come your way, who knows what exciting paths they may lead you to. Leave your mark and legacy in this world how ever short your presence is.

That’s what I intend to do in honour of all of those who haven’t had the privilege to do so.

Have a great evening, see you tomorrow x

P.S I’ve done my 100 squats for today and have had a great day catching up with my lovely mum and some friends for a little bit.

#SU2C

#StillStanding

#Stage4

#MetastaticMelanoma

#Melanoma

#BrainTumours

6 years

 

Daily Dosage 0002

2nd November 2023

Play to your strengths

In life no matter who you are there will always be things that come natural to you and things that don’t. There maybe things you haven’t yet discovered you’re good at yet because you haven’t tried. That’s the great thing about life having opportunity to try new things and not being afraid to be well pretty sh1t at them at first. Every master was once the apprentice.  

I honestly believe we’re all built to have different abilities and capabilities to add some value to this world. It could be you’re really good at art, baking, sewing, plastering, joinery, science, naturally talented in sport or music there are an endless list of things. Our brains and bodies are so amazing, we are all totally unique.

People who are successful in life (what ever that maybe) will have consistently played to their strengths time and time again. But even successful people will need to continually put the effort in to continue to succeed and become even better version of themselves. This also means you need to acknowledge your weaknesses.

When I think about this I’m often reminded of the scene in The Office where it’s Big Keith’s (the accountant) appraisal and David Brent asks him what are his strengths and he just put ‘accounts’. Then he says under weaknesses you’ve put eczema. I chuckle every time thinking of that. Brilliant programme.

So, here’s a thing I want you to do today write down 5 of your strengths. It can be absolutely anything doesn’t have to be work related it can be something regarding a sport or an emotion or skill. I’d maybe be a bit more specific than Keith though and avoid writing anything regarding any ailments or illnesses out of your control.

Now I want to you to write down 5 weaknesses regarding that strength. I’ll give you an example of a couple of mine;

Strengths: Writing

Weakness; Being consistent, my grammar

Strength: Being kind

Weakness: Over sensitive, worry what others think

Strength: Strong legs

Weakness: Poor balance, mobility and weak glute

If you’re anything like me you will find it harder to write down your strengths and be more critical about your weaknesses. We are often so critical of ourselves we forget all our achievements. Now for the remainder of the month if you can I want you to work on the weaknesses that you have identified even if it’s jut one element. I’m going to try and would love to see at the end of the month if by working on or acknowledging our weakness we also might improve a little of our strengths.

That’s it for today I’ve already ticked off my 100 squats. One of the kids were complaining about a sore back so I’m not holding my breath they will complete today’s challenge but I can’t force them that’s something I am slowly learning and working on. I can’t force others to always do the same as me.

Remember no-one is perfect, we all have our flaws but it doesn’t mean we can’t become better versions of ourselves it just requires a little bit of effort and consistency. Something I’m trying to work on myself

Have a great evening, see you tomorrow x

The 2nd Warning Signs

Quote of the Day:

‘I believe in intuition and inspiration…

At times I feel certain I am right while not knowing the reason’ – Albert Einstein

If the absolute worst that could happen to you is that your are wrong for following your gut and body that something isn’t quite right despite what others are telling you. Then surely that’s a risk worth taking? – Rachel Cummings

The start of the subtle changes

It was August 2021 we had just been on holiday to Wales for a week which proved to be rather more stressful than holidays should be possibly be. I won’t go into too much detail but when I look back on all the events that had happened in the months prior, I wonder if they may have triggered stress and subsequently my brain tumours. This is something I will never likely know but something I don’t ever intend on finding out. But it is why I feel so strongly that living a stress-free life is key to health (both mental and physical).This month proved to be probably one of the most traumatic months in my life to date. Despite my blogs I have never gone into specific detail about all the events that happened up to and during my 2nd diagnosis of cancer. For me I avoided it because I wanted to focus all my energy on my health and delving too much into this part of my life brings with it negative energy, anger and upset about all that I have been through and what could have happened if I hadn’t trusted my gut.

It’s only now just over two years later I feel comfortable about sharing these thoughts, the events, the subtle signs in the hope that if someone is reading this, they might find similarities within themselves or a friend/family member that could possibly lead to an early diagnosis (not that I wish for anyone to go through some of the things I have experienced). It’s sort of facing my demons too. Even typing this a wave of emotions are coming over me which is probably a good sign to let it out. Either that or it’s that special time and Ste will be in for a treat of mood swings, suggestions of divorce, death threats and crying. But that’s a totally different blog maybe (perrimenopausalandme!).

A gut feeling

After the holiday I started back at work again (working from home) and the first sign to all this (in my opinion to the appearance of the brain tumours) was that I couldn’t remember my log in details to my works computer. Now if you’re like me any more than 1 weeks break for work and you struggle to remember what you actually do for a living never mind your password. Now I had tried to be compliant for once and changed my password on the recommendation of IS security training. Problem was I couldn’t remember the new one! Ultimately having several attempts and locking myself out. 

I managed to phone the IT department at work who unfortunately couldn’t unlock it remotely which meant I had to get the train to Manchester to get it reset.  Whilst in the office thankfully I decided to tidy my locker as I had hardly step foot in there since COVID and it was my birthday the day prior to the offices being shut so I had some presents and food which no doubt the resident mice would have loved if I hadn’t removed them.

It was so strange walking along the office floor where once so many people had worked together. I remember thinking I miss that (I still do). Despite the long commute and opportunity for work/life balance I have to say there is a lot to be said for PROPER human connection and talking to people face to face to resolve things. Plus, you can waste at least a good half hour in the kitchen talking about random stuff to the poor bloke that wanted to grab a quick coffee, which I was very good at.

Anyway, I went back downstairs and was chatting to someone in IT while they sorted out my laptop and this time, I changed it to something I could remember…. (PASSWORD!).

This was the same day I was expecting a phone call from Professor Board about my latest CT scan. Typically, I got the phone call whilst on a packed train so couldn’t really hear properly and didn’t really want to start asking random things. She said the CT scan results were great asked if I was feeling ok, I just said I was tired and she said she would make another appointment for 6 months’ time. Little did I know that approximately one-week later things would dramatically change for the worse. 

The subtle signs

I was very busy at work and if totally honest had too much on. I was definitely spread too thinly over too many different things multitasking from one thing to the next which didn’t help. It was month end reporting which is always a busy time especially when everyone is on annual leave. I remember messaging a colleague saying I had really bad headaches and I was struggling she suggested it might be the menopause. I couldn’t concentrate at all I had brain fog. I remember I had to put a certain meditation music on just to write my reports. On one particular occasion I was on a team call with a couple of senior members and when asked a simple question I just got really upset because I couldn’t recall simple events just a couple of weeks ago. I later wrote an email to apologise and explain as it was out if character.

I wasn’t sleeping at all. I would be up at 2/3am in the morning tired but not being able to sleep. I was starting to struggle with my movement and it was like I had lost my spatial awareness in that I was bumping into things at home that had been there for ages i.e., kitchen units, worktops, doors. I remember one night falling out of bed because I couldn’t work out where I was. Ste as empathetic as ever woke up and said what the f*ck are you doing as my head was on the floor and legs akimbo next to the bed. I think he thought I was just messing about. 

As days passed my speech then started to get worse it was like I wasn’t in control anymore. So, I phoned the doctors and had a telephone conversation, told him my symptoms and he agreed to a face-to-face appointment with me a couple of days later.

On the face-to-face appointment Ste came with me initially but it went on for that long that my mum ended up having to take over sitting with me as Ste had to go back to work and I was unable to drive. A few days prior I had nearly crashed my car into the kebab shop as my foot just wouldn’t move off the accelerator when my brain told it to. This really scared and upset me as I knew I wasn’t in control. Thankfully I had the sense (for once in my life) to tell Ste and didn’t drive the car after that. In fact, I haven’t drove a car for two years now which I really miss. I lost some independence, but one day hopefully I can drive again but small steps (literally).

At the appointment the doctor got me to do a simple memory test and to be honest I got them all right. It wasn’t short term memory, I was struggling with it was stuff that happened a few weeks ago. I was also tested for walking in a straight line, blood tests were taken which only showed elevated B12 levels. B12 is what usually vegans lack due to lack of meat however mine were showing really high which was ironic as I was vegan at this time. A number of other checks were carried out in my ear and an abdominal examination were all done. An ECG was also requested which came back fine.

Ste managed to come back and my mum went home. The doctor came to the conclusion that I was depressed. Offered me talking therapy for which there was a wait he said. At this point I declined. Deep down in my gut I knew this wasn’t depression.  This is not in any way undermining any symptoms or diagnosis of depression. I know that this can be such a terrible illness but I felt my symptoms weren’t that of someone depressed. So, I went away awaiting a further abdominal scan and collected my sleeping tablets that had been prescribed feeling as though my issues weren’t fully addressed. As the days passed my symptoms got worse and worse. I lost full mobility in my right arm. Both me and Ste thought I maybe I had a stroke.

Thankfully Ste works for a private medical company and as a family member could arrange an online consultation with a GP for me. When I told the Dr my symptoms and previous diagnosis of Melanoma, she immediately said I should arrange for an urgent MRI and to see a Neurologist. She said she would request one via the private medical company however would write a note for me to send to my existing oncologist team to see if they could arrange an MRI sooner. We did and thanks to the my oncologists/skin care team a few days later I had my MRI. 

The results weren’t good nor was the location I received them in. I was in B&Q with my mum for a change of scenery looking for tiles for the BBQ area I wanted to finish (when things like this happen it’s I have a desire to complete all the unfinished jobs around the house similarly as to when I was pregnant, it’s a bit like nesting). My mum had gone looking at plants which she often does and can disappear for hours if you let her. I was mid conversation with the Neurologist whom was telling me the results of the scan and that I had three brain tumours. I saw my mum looking for me and didn’t want her to hear the conversation so kept walking down various aisles to get away from her. In my own way I just wanted to deal with it myself and protect her. I finished the call. When she asked I just made something up and said it was a follow up about an appointment.

A few days later we had a another telephone appointment with a different Neurologist. This time Ste was present, the news wasn’t good he basically said that they might not be able to do anything at all for me. I was heartbroken so was Ste I remember we both laid on the bed crying. Ste was going to cancel football training (he was helping coaching). But I said not too as it was only him doing it that night so we both went. I took the dog for a little stroll whilst he coached. I remember watching Archie trying to savour every bit of him in thinking surely this can’t be it for me. I have so much to live for and besides I haven’t even finished tiling the BBQ area we made.

Lessons Learned

  1. Trust your instincts. If others don’t be persistent. 
  2. Look for the warning signs, in my case these were;
    1. Headaches
    2. Loss of movement
    3. Memory loss/Brain fog
    4. Changes in speech
    5. Mobility issues – (one of my tumours was left hand side so I lost mobility in my right hand side)
    6. Lack of sleep 
  3. If you’re taking on too much, stop. Prioritise what is important and what is achievable, somethings will have to suffer as result otherwise issues never get resolved you become the one letting people down.
  4. Don’t abuse the NHS it is amazing and I we are so lucky to have it. The treatments I have received have been life saving. However, don’t be afraid of seeking alternative opinions if your gut tells you too.
  5. Don’t dwell on negative energy. Writing this has brought some negative emotions to the forefront but hopefully for some benefit of the greater good. It might take me a couple of weeks to get back into my Happy Space after this but hopefully I can let a few more things go and put them behind me.

For more advice on symptoms for Brain Tumours please see the following links:

https://www.thebraintumourcharity.org/

https://www.nhs.uk/conditions/brain-tumours/

https://www.cancerresearchuk.org/about-cancer/brain-tumours/symptoms